Twenty Years of LIFE to its Fullest
I make use of the phrase: You are working my last t-cell more times then I care to share.
Do not be shocked or alarmed
It is just a fact of this man’s life.
The summer/fall of 1991, I was very run-down & fatigued.
Terry, my boyfriend, said I needed to see someone about this.
At his urging I went to a doctor.
I took a battery of tests for chronic fatigue, Epstein’s Bar Virus, Hepatitis A – B & C, mono, etc.
ALL tests came back negative.
So what was wrong w/ me? (Please keep your comments to yourselves)
Terry, who was HIV positive, was certain I was sero-converting. I told him he was crazy, I had safe sex. Tho in all honesty: not always. Terry insisted I take a HIV test ˆ I said: No!
What would that prove? If I was HIV positive; I did not even want to think about such a thing.
We were living in Coconut Grove Florida @ this time & I was not in the mood to party as it was nearly Thanksgiving: White Party Weekend in Miami.
Terry had a nice brownstone on Perry Street in the West Village. (Terry was rich; Yes, life was tough back then)
I told him I wanted to go by myself.
He asked why & I said I needed some alone time.
Terry understood & let me go.
This was something that I knew I had to deal w/ on my own terms.
Arriving in NYC, I proceeded to find out about taking an anonymous HIV test. I went to a clinic on the upper eastside.
Instead of taking your name, they give you a number id.
It was Wednesday, November 27, 1991.
As it would take a few days for the results to come in; I had a few days to think; which included a weekend to worry & stress myself out.
Monday, December 2: I called Dr. Bellman‚s office for my results.
The receptionist asked that I come in. Come in?!
Oh no! The cannot give results cannot be given over the phone.
But, My gut feeling was not good.
I went in.
Damn it the elevator was broken that day.
I trudged up 5-6 flights of stairs to his practice.
Out of breath I sat, waited & perspired.
Soon I was taken into an inner office. The Doctor came in, looking grim.
Dr. Bellman (a warm, sensitive man) had tears as he told me that I had tested positive for the AIDS virus.
I just stared blankly & went into my own version of shock.
I do not remember leaving the office, but I know was in Greenwich Village.
I walked around for quite sometime w/ no particular destination.
The sky was a brilliant blue. In fact, I do not ever recall it being as blue as it was that day, even now.
The sun shown so bright; it was blinding.
An ethereal floating sensation came over me; as my mind raced .
Visions of loved ones & days gone by flew in & out of my head.
I ALWAYS told myself, if I became HIV poz I would END my life. I witnessed a few friends suffer & die horrific deaths.
That was not going to me. Or was it? Was I to die?
I was told that day; I had a good 6 to maybe 9 years of reasonable normal time (given the medications that were currently being utilized) before I would have AIDS.
AZT was the drug of the moment.
Six to Nine years!
Hello! Thus the new journey of life began.
I was about to turn 27; but all that was out the door.
Life restarted that day.
The 1st few years consisted of me dying’ & being weak of heart & spirit. I was my worst enemy. I did & did not give a shit.
Then one day, I stopped feeling sorry for myself.
The pity party of one needed to end.
I decided to LIVE. (see Auntie Mame)
There can be a lot to say about attitude. GOOD attitude.
It is now been 20 years.
Not a day goes by that I am not reminded.
I take my regiment of pills everyday.
It is a far change from the all the different pills that have come & gone.
I have great health insurance & wonderful doctor(s) & nurses who have watched over me.
But, as I want to remain transparent, there are choices that I have made in regards to my health have been wise & stupid.
Usually: more stupid: Recreational party favors anyone?!
I am lucky. I know.
I do not share this info very often, because I am in the biz of image & perception.
Everyone wants to be thought of as healthy, looking good; yada yada yada; sometimes @ a cost that’s irreversible.
I gather info from others to learn & improve life. I know I am observed & judged from what people perceive me to be: We are ALL constantly reminded of perceptions & judgements.
What appears to be is not always the REAL.
The truth is the best & ONLY way to be.
I have been hospitalized 2x w/ complications. I did @ one time actually / clinically have AIDS. My immune system was worn-out.
Today: Healthy as a horse, Over 1000 t-cells & an undetectable virus. (crazy, right?!)
I am here to stay; today is December 1 is World AIDS Day, take a moment to think of those who are not as fortunate & think what you can do to help them out.
A kind word or act makes a huge difference to someone.
A point must be made that HIV / AIDS is not going away, in fact it is now the 3rd leading cause of death among African-American women in their 30s & 40s;
The number of new infections among gay & bi-sexual black men under 30 has increased 48% between 2006 & 2009 (the latest U.S. figures available)
This epidemic’s epicenter falls in the South, where poverty & lack of affordable health care are thwarting education, testing, & treatment.
16 southern states & Washington D.C. account for nearly 50% of the country’s new infections according to Patrick Packer, executive director of the Southern AIDS Coalition.
Learn more & share this w/ others http://www.southernaidscoalition.org
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about 4 months ago
Thank you for sharing. I know that telling the truth and living it are two of the hardest things in the world. I am proud to be your friend, and know that we must keep being diligent in keeping the word out there. Happy New Year!! xo